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Facts about
Spina Bifida |
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**Please scroll down to Resources on this page and view "VIDEO: Focus on Spina Bifida Adoption"**
In addition, please see our special need description of Meningocele (a very common and minor form of Spina Bifida) also. Spina Bifida is a very scary diagnosis to hear when considering adoption. Spina bifida occurs in various forms of severity. Please read that last sentence again, because it is important. In many cases, a child will be described as having "repaired spina bifida". This could mean that the child had a very minor defect that has been fully corrected. It is important to obtain as much medical information as possible, as the child could now be very healthy, or it may be that the child has a more severe form that will require further treatment and adaptations.
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Challenges |
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Parents of children with spina bifida receive support from a medical team that may include several doctors (such as neurosurgeons, urologists, orthopedic surgeons, rehabilitation specialists, and general pediatricians), a nurse practitioner, physical and occupational therapists, and a social worker.
The goal is to create a lifestyle for the child and family in which the disability interferes as little as possible with normal everyday activities. |
Treatment |
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When treatment for spina bifida is necessary, it's done through surgery, although such treatment doesn't always completely resolve the problem. In its most mild form, Spina Bifida is a nearly invisible special need. In it's most severe form, a child may have paralysis in some degree and bowel/bladder problems. |
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Articles On
Spina Bifida |
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Our Son, Our Hero
Diagnosed with spina bifida, this little boy always reaches for the stars
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