Logo

Spacer Adoption Spacer Waiting Children Spacer Articles Spacer Voices of Adoption Spacer Adoption Community

Spacer
Osteogenesis Imperfecta 
Spacer
Spacer
Photolistings
Spacer
Adoption Guide
Spacer
Find Agency
Spacer
Country Guidelines
Spacer
Special Needs FAQ
Spacer
Back Issues
Spacer
Adoption Events
Spacer
Help a Child
Spacer
Free Stuff
Spacer
Resources
Spacer
Spacer
Video Section
Spacer
  Like Our Page  
 
Spacer
 
RainbowKids Newsletter
Join Now
 
Spacer
 
Contact Wizard
Contact Wizard
 
Spacer
 
. Special Need Home .
Spacer
. Become an Advocate .
Spacer
. Share Your Story .
Spacer
. Community .
Spacer
. . .
RainbowKids . Rainbowkids
Facts about  Osteogenesis Imperfecta

Osteogenesis imperfecta, sometimes called brittle bone disease, is due to a child’s inability to produce normal levels of collagen, a protein required for strong bones. It is an inherited disorder and may affect a child’s bones and joints. Cases can be mild or severe.
Children with osteogenesis imperfecta may suffer from stunted growth. They may appear short for their age or seem to have dwarfism. Scoliosis and other bone deformities are possible with osteogenesis imperfecta. Poor muscle control and discoloration of the sclera or whites of the eyes are common.
A certain type of the disease is almost always fatal within the first year of life. This form, called type II, results in respiratory failure and bleeding in the brain.

Challenges
  • Fractures may not be noticed readily. If the child appears cranky, irritable, or unable to sleep, a doctor should check for the presence of a fracture. Doctors should treat all fractures. For children with osteogenesis imperfecta, an injury does not have to occur for a bone to fracture. Normal activities like getting out of bed and climbing stairs can fracture bones.
  • This condition does not affect a child’s intellect and patients have normal life expectancies.
  • Treatment
  • There is no cure for osteogenesis imperfecta. Medications are available to help strengthen bones somewhat. Infection in the bones is a concern for children with osteogenesis imperfecta, and doctors prescribe antibiotics to treat or prevent infections.
  • Crutches, splints, and other ambulatory aids can help a child with osteogenesis imperfecta to walk better. Implanting metal rods can improve bone strength, and fusing the spine may prevent damage and strengthen the child’s frame. A diet high in calcium and vitamin D is important. Normal activity is encouraged as weight bearing helps to strengthen bones, but physical sports and activities that are likely to result in fractures need to be avoided.
  • Rainbowkids Spacer Rainbowkids
    RainbowKids . Rainbowkids
    Waiting Children With  Osteogenesis Imperfecta
    http://www.rainbowkids.com/WC?spid=31
    Rainbowkids Spacer Rainbowkids
    RainbowKids . Rainbowkids
    Meet Adoptive Families Advocating for  Osteogenesis Imperfecta
    Members who advocate for Osteogenesis Imperfecta
    Rainbowkids Spacer Rainbowkids
    RainbowKids . Rainbowkids
    Articles On Osteogenesis Imperfecta
    Health & Development Issues in Newly Adopted Children
    Dr. Jane Aronson shares with families what to have evaluated their newly adopted child
    Adopting a Special Needs Child...Is It For You?
    When considering a special needs child, there are a few important questions to ask yourself...
    Attachment and the Special Needs Child
    Meeting the needs of institutionalized and special needs children after adoption.
    Homeschool: Another Learning Environment for Special Children
    How home education can help the adopted child
    Changing Trends in International Adoption
    One year post-hague
    Adopting the International Child with Special Needs
    Over 30 years of evaluating special needs children gives author, Teri Bell, a special insight into what parents need to be aware of.
    Adopting a Child with Osteogenesis Imperfecta
    Focus on Waiting Child Needs
    Rainbowkids Spacer Rainbowkids
    RainbowKids . Rainbowkids
    Resources Suggest a Link/Resource
    Shriner's Hospital: Free Medical Care for SN Children
    Osteogenesis Imperfecta Foundation
    Rainbowkids Spacer Rainbowkids

    . . .
    Home   |   Contact Us   |   About Us   |   Advertise on RK   |   Link to RK   |   Site Map   |   Sponsors Login
    Copyright © 2006 RainbowKids.com. Created and maintained by QualityClix
    This site is optimized for Netscape 4 and Internet Explorer 4 or higher.
    About Us Contact Us Advertise With Us Choose a Country Find an Agency Find a Child Home