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Facts about  Hemophilia

Hemophilia is a rare genetic disorder that affects the blood’s ability to clot. Many forms of hemophilia are seen only in males. Other forms are equally seen in males and females. The first sign of Hemophilia in a child are usually excessive bruising or a bloody nose that will not stop bleeding. Children with hemophilia can exhibit excessive bruising, proficient bleeding, frequent nose bleeds, and bruising and bleeding in the joints. Blood may also be present in the urine, giving it a brown, tea-like color. Mild cases may go unnoticed for years.

Challenges
  • An IV can administer extra clotting factors to children with more severe hemophilia. Children may require multiple blood transfusions to maintain a healthy blood count.
  • Treatment
  • Applying ice and pressure to an injection site may help limit bleeding when children must have injections or IV access. Properly fitting shoes and thick socks can help prevent injuries, and padded clothing may protect the skin from bruises and tears. A physician should immediately evaluate any uncontrolled bleeding as well as any head injuries, as brain contusions may continue to bleed and put pressure on the brain.
  • These children should not take aspirin for any reason as aspirin thins the blood. Give a child extra fluids after an injury to help maintain blood pressure. This condition has no cure, but when protected from injuries, these children can live active, normal lives.
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    Waiting Children With  Hemophilia
    http://www.rainbowkids.com/WC?spid=25
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    Meet Adoptive Families Advocating for  Hemophilia
    Members who advocate for Hemophilia
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    Articles On Hemophilia
    Health & Development Issues in Newly Adopted Children
    Dr. Jane Aronson shares with families what to have evaluated their newly adopted child
    Adopting the International Child with Special Needs
    Over 30 years of evaluating special needs children gives auther, Teri Bell, a special insight into what parents need to be aware of.
    Adopting a Special Needs Child...Is It For You?
    When considering a special needs child, there are a few important questions to ask yourself...
    Attachment and the Special Needs Child
    Meeting the needs of institutionalized and special needs children after adoption.
    Homeschool: Another Learning Environment for Special Children
    How home education can help the adopted child
    Changing Trends in International Adoption
    One year post-hague
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    Resources Suggest a Link/Resource
    Shriner's Hospital: Free Medical Care for SN Children
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