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Amniotic Band Syndrome / Missing Limbs 
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Facts about  Amniotic Band Syndrome / Missing Limbs

Amniotic Band Syndrome occurs when a tear is made in the inner layer of the amniotic sac that holds the baby while in the womb. The tear results in band-like fibrous threads of the sac floating in the amniotic fluid with the baby. These bands can entangle the baby’s body and impair circulation, cause deformities or even amputate parts of the body. In some cases, amniotic banding can result in a miscarriage. It is estimated that 1 in 1200 live births have Amniotic Band Syndrome. This syndrome is not inherited, nor does it cause any type of mental impairment.

The banding most often affects fingers, toes, arms or legs. The child may be born with fingers and toes that are small, missing, or webbed together. The area of banding appears as a deep grove in the flesh as if a tight rubber band has been placed around the appendage, resulting in swelling, decreased circulation and in some cases fingers and toes that are placed higher up on the arm or leg than normal. Swelling of the affected joints is common, and compression dressings may be needed to control edema. Because amniotic bands can impair the movement of the baby in the womb, club foot often occurs as well. Hemangiomas are common occurrences with Amniotic Band Syndrome.

Challenges
  • Children born with Amniotic Band Syndrome can have a mild form affecting just a few fingers, or may be missing a limb. Most children adapt well to their condition, living full and fulfilling lives.
  • Treatment
  • For many children, no treatment is needed. For others, treatment there is plastic surgery and orthopedic repair or affected appendages. Children born with Amniotic Banding Syndrome grow normally outside of the damage caused by the banding. Many children with this condition have been adopted into loving families.
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    Waiting Children With  Amniotic Band Syndrome / Missing Limbs
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    Meet Adoptive Families Advocating for  Amniotic Band Syndrome / Missing Limbs
    Members who advocate for Amniotic Band Syndrome / Missing Limbs
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    Articles On Amniotic Band Syndrome / Missing Limbs
    Health & Development Issues in Newly Adopted Children
    Dr. Jane Aronson shares with families what to have evaluated their newly adopted child
    Healing Hands
    Adoptive mom and doctor of international medicine, Dr. Jane Aronson is where families turn when they need answers
    Adopting the International Child with Special Needs
    Over 30 years of evaluating special needs children gives auther, Teri Bell, a special insight into what parents need to be aware of.
    Adopting a Special Needs Child...Is It For You?
    When considering a special needs child, there are a few important questions to ask yourself...
    Attachment and the Special Needs Child
    Meeting the needs of institutionalized and special needs children after adoption.
    Homeschool: Another Learning Environment for Special Children
    How home education can help the adopted child
    Our daughter with Amniotic Band Syndrome
    A journey to adopt our daughter
    Just a Child
    Adopting our perfect child with a limb difference
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    Resources Suggest a Link/Resource
    Amniotic Band Syndrome Website
    Shriner's Hospital: Free Medical Care for SN Children
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