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Facts about  Albinism

Simply put, Albinism means that a person lacks skin color. It is genetically inherited.

Children with albinism can have very white skin, light colored hair and their eyes can appear red, pink, dull grey, light blue or light brown. Hair color can be snowy white to reddish brown. While there are a few rare forms of albinism that include mild blood clotting abnormalities (Hermansky-Pudlak Syndrome) and hearing problems, children with albinism suffer few physical effects of the condition outside of vision problems and skin that is prone to sunburn. They experience normal physical and intellectual development.

Challenges
  • Because of the low levels of pigment in the eyes, children with albinism are often very sensitive to light. Wearing sunglasses, even indoors, can help alleviate this discomfort.
  • It is common for children with albinism to have extreme farsightedness, nearsightedness or astigmatism. Corrective lenses can help improve these vision problems but often, the defect is so severe that problems persist even with glasses or contact lenses.
  • An experienced optometrist can usually improve the overall vision of a child with albinism, but the vision problems cannot be completely eradicated.
  • Treatment
  • There is no “cure” for Albinism.
  • Children born with this condition go on to live happy, healthy lives
  • While very rare, families should have their child tested for Hermansky-Pudlak Syndrome
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    Waiting Children With  Albinism
    http://www.rainbowkids.com/WC?spid=18
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    Meet Adoptive Families Advocating for  Albinism
    Members who advocate for Albinism
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    Articles On Albinism
    Single Plus Two
    Deciding to adopt for the second time
    Meant to Be
    Albinism and Adoption
    Adopting our Son with Albinism
    After adopting two daughter, a family finds their son on a waiting child list
    Health & Development Issues in Newly Adopted Children
    Dr. Jane Aronson shares with families what to have evaluated their newly adopted child
    Adopting a Special Needs Child...Is It For You?
    When considering a special needs child, there are a few important questions to ask yourself...
    Attachment and the Special Needs Child
    Meeting the needs of institutionalized and special needs children after adoption.
    Homeschool: Another Learning Environment for Special Children
    How home education can help the adopted child
    Changing Trends in International Adoption
    One year post-hague
    Test Article QC
    Test Article QC
    Why Wait to Adopt?
    Children are ready to be adopted today
    Adopting the International Child with Special Needs
    Over 30 years of evaluating special needs children gives author, Teri Bell, a special insight into what parents need to be aware of.
    Brothers for Life
    Russian Twins find their family in Texas
    Adopting our Son with Albinism
    After adopting two daughters, a family finds their son on a waiting child list
    Healing Hands
    Adoptive mom and doctor of international medicine, Dr. Jane Aronson is where families turn when they need answers
    Adoption Changes: The UAA
    Universal Accreditation Act
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    Resources Suggest a Link/Resource
    NOAH
    National Organization for Albinism and Hypopigmentation
    BaiChina
    Yahoo Group - Families interested in adoption from China
    Shriner's Hospital: Free Medical Care for SN Children
    Albinism
    VIDEO: Focus on Albinism
    Excellent!
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