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Facts about
Albinism |
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Simply put, Albinism means that a person lacks skin color. It is genetically inherited.
Children with albinism can have very white skin, light colored hair and their eyes can appear red, pink, dull grey, light blue or light brown. Hair color can be snowy white to reddish brown.
While there are a few rare forms of albinism that include mild blood clotting abnormalities (Hermansky-Pudlak Syndrome) and hearing problems, children with albinism suffer few physical effects of the condition outside of vision problems and skin that is prone to sunburn. They experience normal physical and intellectual development.
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Challenges |
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Because of the low levels of pigment in the eyes, children with albinism are often very sensitive to light. Wearing sunglasses, even indoors, can help alleviate this discomfort.
It is common for children with albinism to have extreme farsightedness, nearsightedness or astigmatism. Corrective lenses can help improve these vision problems but often, the defect is so severe that problems persist even with glasses or contact lenses.
An experienced optometrist can usually improve the overall vision of a child with albinism, but the vision problems cannot be completely eradicated. |
Treatment |
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There is no “cure” for Albinism.
Children born with this condition go on to live happy, healthy lives
While very rare, families should have their child tested for Hermansky-Pudlak Syndrome |
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Articles On
Albinism |
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Healing Hands
Adoptive mom and doctor of international medicine, Dr. Jane Aronson is where families turn when they need answers
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| NOAH |
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National Organization for Albinism and Hypopigmentation |
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| BaiChina |
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Yahoo Group - Families interested in adoption from China |
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